Eleanor Roosevelt, 1958

'Where, after all, do universal human rights begin? In small places, close to home -- so close and so small that they cannot be seen on any map of the world. Yet they are the world of the individual person... Unless these rights have meaning there, they have little meaning anywhere. Without concerted citizen action to uphold them close to home, we shall look in vain for progress in the larger world.' Eleanor Roosevelt, 1958

The Small Places has moved...

The Small Places has moved to a new home here, including all the old posts. Any posts after 6th March 2014 will appear on the new website, but old posts are preserved here so that URLs linking here continue to work. Please check out the new site.

Sunday 24 March 2013

UN Special Rapporteur calls for an end to involuntary treatment and detention justified by mental illness... or does he?

The UN Special Rapporteur on Torture and other Cruel, Inhuman or Degrading Treatment or Punishment, Juan E. Méndez, issued a report and a statement* to the UN Human Rights Council on 4th March this year, in which he discusses medical interventions which override a person’s choices on disability related grounds – including involuntary treatment and detention.  He places them in the context of the UN Convention on the Rights of Persons with Disabilities and discusses their relationships with inhuman and degrading treatment and – in some cases – torture.

UN Convention on the Rights of Persons with Disabilities as the ‘new normative paradigm’ for interpreting norms around torture, inhuman and degrading treatment
The Special Rapporteur’s report and statement are firmly grounded in the normative ordering of the UN Convention on the Rights of Persons with Disabilities (CRPD). Contrary to some recent suggestions that treaties like the UN CRPD simply ‘replicate’ the rights contained in other treaties for people with disabilities, the UN CRPD contains some radical departures from other human rights norms, especially in the area of involuntary treatment and confinement of persons with mental disabilities. The Special Rapporteur stated that ‘the Convention on the Rights of Persons with Disabilities offers the most comprehensive set of standards on the rights of persons with disabilities, inter alia, in the context of health care’ [61]. As we shall shortly see, he is critical of other human rights standards which permit involuntary treatment and confinement of persons with disabilities.

Thursday 21 March 2013

How often do IMCAs challenge decision makers? Not very.

Apologies that such a significant issue only gets a micro-post, I'm buried alive in work today.  But I wanted to share with you some data on complaints and legal action which originated with an IMCA referral.  As you all know, IMCAs were invented in response to concerns over the lack of oversight over best interests decision making.  They have a power (notably, not a duty) to initiate complaints or legal action on behalf of P, although there is an absolute dearth of guidance as to when they should exercise this power.  Under s39D, IMCAs referred to support the detainee or their representative have not only a power but an active duty to help them exercise their rights to challenge the detention if it appears that they want to. How often have they exercised this power?

Monday 18 March 2013

Glad tidings

A while back I brought you news that Liberty had written to the Joint Committee on Human Rights and called for an inquiry into the Mental Capacity Act and the DOLS.  Not so long after that Baroness Browning (who was heavily involved in campaigning on the original Bournewood case) expressed concern about the way that the MCA 'is virtually ignored by many professionals who not only do not advise people of their rights under the Act but just ignore it.'  She concluded 'If ever a piece of legislation cried out for post-legislative scrutiny, it is this Act of Parliament.'  A short time later she drew attention to the problems with the DOLS and stated that she would personally write to the JCHR suggesting they conduct an inquiry.  I haven't seen any developments from the JCHR since Liberty's letter (disclosure: I've written to them twice on this topic and, disappointingly, haven't even received an acknowledgement of my email...).  However, the House of Lords has sprung into action, and announced 'the appointment of an ad hoc post-legislative scrutiny committee to examine the Mental Capacity Act 2005, to report before the end of the 2013-14 Session.'  To be precise, they are concerned about whether the MCA is human rights compliant, despite the insistence of the Ministry of Justice and the Department of Health that it is:
54. The Government's post-legislative memorandum suggested that the legislation was working well other than in a few "small and technical" areas. This view was broadly upheld in 2010 by the Public Guardian's evidence to the Justice Committee. Since that date concerns have been expressed that the procedural safeguards in the Act may be inadequate to satisfy the requirements of the Human Rights Act 1998. The Mental Capacity Act was amended in the light of the Bournewood judgment which found the UK in breach of Article 5 of the ECHR. The recent findings about the treatment of residents at the Winterbourne View care home, together with a recent Mencap report highlighting deficiencies in the care of mentally disordered patients, suggest that the legislative regime for mentally incapacitated adults would merit scrutiny by a House of Lords post-legislative scrutiny committee. Such scrutiny could include consideration of external oversight of the decisions made on behalf of incapacitated individuals by medical professionals and guidelines on "best interests" decisions, where social workers and others have taken over decision-making in areas such as personal welfare, type of care or financial affairs on someone else's behalf.
You might also be interested to read this recent exchange about the DOLS before the House of Commons Health Committee.  I think Rosie Cooper asks a very good question about why we are so tolerant of de facto detention by the medical and social care professions, so long as there is no malicious intention, when we would not be so tolerant of well intentioned de facto detention by, say, the police.  There was also discussion of the vagaries of the meaning of deprivation of liberty (what does 'deprivation of liberty' mean, asks an MP - 'what an interesting question', responds the representative of the Royal College of Psychiatrists), the forthcoming Cheshire case, reminiscences for the good work by the disbanded DOLS team at the Department of Health, expressed concern about the lack of safeguards in supported living (including a rather out of touch suggestion that everybody in supported living will have had capacity to make a tenancy...).  In my view the problems with the appeal mechanism and variability in application of the DOLS weren't really drummed home enough, but it's a start - and hopefully this House of Lords scrutiny will be an opportunity to air such concerns.

Thanks very much to Roger H for bringing the House of Lords and Health Committee news to my attention.

Thursday 14 March 2013

In passing... France asks are retirement homes prisons?

This is a fleeting post...  The UN Optional Protocol on the Convention Against Torture (OPCAT) requires signatory states (of which the UK is one) to establish National Preventive Mechanisms (NPM) to conduct independent inspections of places of detention for the purpose of preventing torture, abuse and inhuman or degrading treatment.

In the UK our NPM is made up of a number of bodies which visit places of detention, including Her Majesty's Inspectorate of Prisons (who co-ordinate the UK's OPCAT bodies), and - of particular relevance to readers of this blog - the Care Quality Commission.  Historically the role of OPCAT when it came to health and social care was conceived of in terms of inspecting places where people were detained under the Mental Health Act.  This is something we had been doing in England for a couple of centuries (except for a hiatus between the Mental Health Act 1959 and the 1983 Act).  More recently, with the advent of the DOLS, social care institutions have fallen within CQC's OPCAT responsibilities.  Interestingly, in this year's NPM report by the UK concerns are expressed twice about de facto detention in hospitals and care homes: